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EhlersDanlosSyndrome news

More than $150000 donated to Season for Caring this year


MyStatesman.com (blog) - Dec 8, 2016
Keila Vasquez and Luis Olais face his rare genetic disease, Ehlers-Danlos syndrome, which their 3-year-old daughter also has. They are waiting to find out about their infant son. Nominated by: SAFE (Stop Abuse for Everyone) Austin: Strong Start Program ...
 

Whataburger gives $25000 to Statesman Season for Caring charity


Austin American-Statesman - Nov 28, 2016
Noah's family is waiting to hear if he inherited the rare genetic disorder Ehlers-Danlos syndrome from his father, Luis Olais, 21. His 3-year-old sister, Delilah, already has been diagnosed with the syndrome, which causes her tissue to be thin, leading ...
 

Is it possible to be too flexible? The answer isn't what you think.


Yahoo Finance - Dec 6, 2016
In rare cases, hypermobility can be a sign of Ehlers-Danlos syndrome, a group of inherited disorders that affect the connective tissues. The most severe forms of Ehlers-Danlos syndrome can weaken the aorta and the arteries to the kidneys and spleen—so ...
 

Ehlers Danlos Syndrome - premium items on eBay

USED (GD) The Official Patient's Sourcebook on Ehlers-Danlos Syndrome: A Revised


 

Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better


 

USED (VG) Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Livin


 

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Ehlers Danlos Syndrome books

Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome


by: Brad T Tinkle
As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: ".
>> More info on Amazon

Zebras of Hope: A Guide to Living with Ehlers-Danlos Syndrome


by: Ellen C. Kelleher
This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life.
>> More info on Amazon

A Guide to Living with Ehlers-Danlos Syndrome : Bending without Breaking


by: Isobel Knight

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists.
>> More info on Amazon

21st Century Complete Medical Guide to Ehlers-Danlos Syndrome , Hypermobility, Authoritative Federal Government Clinical Data and Practical Information for Patients and Physicians


by: PM Medical Health News
This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of Ehlers-Danlos Syndrome (EDS), connective tissue disorders, and hypermobility. This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.
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Ehlers Danlos Syndrome videos

Ehlers-Danlos Syndrome - CRASH! Medical Review Series


Disclaimer: The medical information contained herein is intended for physician medical licensing exam review purposes only, and are not intended for diagnosis ...
 

Sarasota teen battles Ehlers Danlos Syndrome


 

EDS Primer -- Could you have Ehlers-Danlos syndrome?


Dr. Diana as Patient explains the various forms of Ehlers-Danlos Syndrome (EDS). This is often misdiagnosed as \
 

Rare Girl | Ehlers-Danlos Syndrome - Short Documentary


Jenny Robinson has dealt with ongoing pain her entire life but it was not until January 2015 that she was officially diagnosed with Ehlers-Danlos Syndrome ...
 

Ehlers-Danlos Syndrome


This documentary will take you through Lynn's life beginning at age 15 when she began to experience nagging pains in her hands during swim practice until she ...