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EhlersDanlosSyndrome news

Mom Fights Back After Baby's Rare Genetic Condition Was Mistaken for Child Abuse

Babble (blog) - Sep 12, 2017
Her daughter actually suffered from a rare genetic condition called Ehlers-Danlos syndrome Type 3, a connective tissue disorder that causes fragility fractures, as well as rickets caused from a severe Vitamin D deficiency. Zeydn's Vitamin D levels were ...

Mum makes heartbreaking sacrifice to give her teenage daughter a chance at life-changing surgery

Mirror.co.uk - Sep 18, 2017
A mother has described the heartbreaking sacrifice she has made so her daughter has a chance at life-changing surgery. Janine Gray and her teenage daughter Ellie both suffer from the extremely rare Ehlers Danlos Syndrome (EDS), which leaves them both ...

Good Morning Britain: Viewers praise inspirational guest Jade Gadd who's set to be replaced in the classroom by her ...

OK! Magazine - Aug 30, 2017
Speaking to Good Morning Britain hosts Richard Madly and Ranvir Singh, Jade Gadd revealed she's set to be replaced at school by a robot. Jade suffers from a rare and debilitating medical condition called Ehlers-Danlos syndrome. Ehlers-Danlos syndrome ...

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Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better


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Pictures That Show What Ehlers Danlos Syndrome Really Looks Like

Read the full story here: https://themighty.com/2016/12/ehlers-danlos-syndrome-pictures/ TheMighty.com @TheMightySite Facebook.com/TheMightySite.

Ehlers-Danlos Syndrome

This documentary will take you through Lynn's life beginning at age 15 when she began to experience nagging pains in her hands during swim practice until she ...

Do you have Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome is a connective-tissue disorder and is often undiagnosed. These r some of the symptoms of the disorder. See if you or anyone else has ...

Living with EDS: Spinal Instability

Ehlers Danlos Syndrome is so much more than joint pain and party tricks. And spinal instability is so much more than just back/neck pain. Spinal instability is a ...

EDS: An Invisible Illness

A short documentary featuring two students with Ehlers-Danlos Syndrome. For more information visit ednf.org.