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EhlersDanlosSyndrome news

Ehlers-Danlos syndrome: Woman takes first steps after surgery

BBC News - Sep 22, 2018
A woman with Ehlers-Danlos syndrome took her first steps after raising £100,000 for life-saving surgery. Carrie Beckwith-Fellows, from Kielder, Northumberland, was bed-bound until she underwent surgery in Spain to fuse her head and neck together.

The Child Abuse Contrarian

ProPublica - Sep 26, 2018
In almost every case, he has made the same finding: instead of blaming any injuries on abuse, he has diagnosed the child with a rare genetic disorder, Hypermobile Ehlers-Danlos syndrome, a condition that affects the connective tissues of the skin ...

Becoming ZebraStrong: Ehlers-Danlos Society Launches International Patient Empowerment and EDS Awareness Tour

Digital Journal - Oct 9, 2018
Severity may range dramatically, even within families. Prognosis depends on the type of Ehlers-Danlos syndrome and the individual. Hypermobile Ehlers-Danlos Syndrome (hEDS). Hypermobile EDS (hEDS) typically begins with extreme joint hypermobility, ...

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Our Stories of Strength : Living with Ehlers-Danlos Syndrome by Mysti Reutlinger


Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better


Ehlers Danlos Syndrome Awareness Ribbon Vinyl Wall Decal or Car Sticker


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Ehlers Danlos Syndrome videos

Ehlers Danlos Syndrome Explained Clearly - Exam Practice Question

MedCram subscribers: Visit https://www.boardvitals.com/medcram for discounts on a massive library of medical board questions like this one. Dr. Roger Seheult ...

Woman with Ehlers-Danlos syndrome explains her condition - Daily Mail

Jojo Meadows, 38, from Hereford, suffers from Ehlers-Danlos Syndrome (EDS) - a rare condition which causes her bones to dislocate up to a whopping ten ...

Signs You Might Have Ehlers-Danlos Syndrome

The Mighty community shares signs they noticed that ultimately ended up to be due to Ehlers-Danlos syndrome. Read the full story here: ...

♡ What Is Ehlers Danlos Syndrome? (EDS) | Amy Lee Fisher ♡

What Is Ehlers Danlos Syndrome? (EDS) ♡ • CHECK THESE OUT!! • Faces of Chronic Illness Video: http://ehlers-danlos-syndrome.purzuit.com/video/QrInLT5_yxo.html ...

EDS Ehlers-Danlos Syndrome Documentary \

Interview with a Zebra. A personal look at life with Ehlers-Danlos Syndrome and its effects on daily living.