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EhlersDanlosSyndrome news

Miss Maryland contestant using pageants to spread awareness about Ehlers-Danlos Syndrome

ABC2 News - May 24, 2017
With those words, 23-year-old Victoria Graham won her first pageant in March. The win is much more than a tiara and a title to her. Its a chance to educate people about a condition she has called Ehlers-Danlos Syndrome (EDS). "I've been able to go ...

Ehlers-Danlos Syndrome: 'You Just Have to Keep Going'

U.S. News & World Report - May 22, 2017
Ehlers-Danlos Syndrome: 'You Just Have to Keep Going'. A Massachusetts woman has been diagnosed with Ehlers-Danlos Syndrome after nearly 36 years of doctor's misdiagnosis. | May 22, 2017, at 4:45 p.m.. MORE. LinkedIn · StumbleUpon · Google + ...

May is Ehlers-Danlos Syndrome Awareness Month

Rare Disease Report - May 4, 2017
May is Ehlers-Danlos Syndrome (EDS) Awareness month. EDS is a group of connective tissue disorders generally characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. Even though the patient may appear healthy at a quick ...

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Ehlers Danlos Syndrome books

Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome

by: Brad T Tinkle
As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: ".
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A Guide to Living with Ehlers-Danlos Syndrome : Bending without Breaking

by: Isobel Knight

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists.
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Zebras of Hope: A Guide to Living with Ehlers-Danlos Syndrome

by: Ellen C. Kelleher
This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life.
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Special Like Me...: Ehlers-Danlos Syndrome

by: Mrs. Janelle L. Shannon LCSW
Special Like Me… Ehlers-Danlos Syndrome is uniquely designed to assist parents, caregivers, and professionals facilitate conversations with children who have Ehlers-Danlos Syndrome (EDS). This book is about a little boy's journey from bumps and bruises to diagnosis and beyond. The goal is to show EDSers and other children they are beautiful and amazing people that they can manage anything they set their mind to.
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Ehlers Danlos Syndrome videos

Pictures That Show What Ehlers Danlos Syndrome Really Looks Like

Read the full story here: https://themighty.com/2016/12/ehlers-danlos-syndrome-pictures/ TheMighty.com @TheMightySite Facebook.com/TheMightySite.

Sarasota teen battles Ehlers Danlos Syndrome


EDS: An Invisible Illness

A short documentary featuring two students with Ehlers-Danlos Syndrome. For more information visit ednf.org.

Chiari Malformation / Ehlers Danlos Syndrome (Documentary)

This documentary will take you through Lynn's life beginning at age 15 when she began to experience nagging pains in her hands during swim practice until she ...

EDS Primer -- Could you have Ehlers-Danlos syndrome?

Dr. Diana as Patient explains the various forms of Ehlers-Danlos Syndrome (EDS). This is often misdiagnosed as \