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EhlersDanlosSyndrome news

Woman, 28, who could barely walk was dismissed by doctors as 'exaggerating' for FOUR YEARS

Daily Mail - Jun 5, 2018
Megan King, 28, was told by doctors for four years that her symptoms were all in her head; In September 2015, King was finally diagnosed with Ehlers-Danlos syndrome; The disorder produces weak or faulty collagen, meaning tissues that hold together skin ...

Martinsburg woman raises awareness for Ehlers-Danlos Syndrome

Shepherdstown Chronicle - May 25, 2018
In April, Ashton Nesmith-Kochera, a board-certified patient advocate and Tri-State Ehlers-Danlos Syndrome Support Group leader, lobbied for Governor Jim Justice to proclaim May as EDS Awareness Month. Nesmith-Kochera, who lives in Martinsburg, was ...

Community rallying around 11-year old who has two rare diseases

NewsCenterMaine.com WCSH-WLBZ - Jun 2, 2018
WELLS (NEWS CENTER Maine) -- An 11-year-old boy in Wells is battling not one but two rare diseases, both have no cure. Ari Peterson-McLoud was born with Crohn's Disease and Ehlers-Danlos Syndrome. The conditions cause debilitating abdominal and ...

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The Worst Symptoms of Ehlers Danlos Syndrome || EDS Awareness Month

It's time to get down to the nitty gritty of what its like to have Ehlers Danlos Syndrome or Hypermobile Spectrum Disorder this EDS awareness month. Many lists ...

Signs You Might Have Ehlers-Danlos Syndrome

The Mighty community shares signs they noticed that ultimately ended up to be due to Ehlers-Danlos syndrome. Read the full story here: ...

♡ What Is Ehlers Danlos Syndrome? (EDS) | Amy Lee Fisher ♡

What Is Ehlers Danlos Syndrome? (EDS) ♡ • CHECK THESE OUT!! • Faces of Chronic Illness Video: http://ehlers-danlos-syndrome.purzuit.com/video/QrInLT5_yxo.html ...

Ehlers Danlos Syndrome Explained Clearly - Exam Practice Question

MedCram subscribers: Visit https://www.boardvitals.com/medcram for discounts on a massive library of medical board questions like this one. Dr. Roger Seheult ...

ehlers danlos syndrome and hearing loss || life with POTS, EDS, etc. #17

this week, sh*t gets real at the end. nanowrimo: https://nanowrimo.org/ HOW TO HELP: gofundme: ...