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EhlersDanlosSyndrome news

Remarkable dog awarded animal OBE for being owner's 'lifeline'

Metro - Jan 19, 2017
Lucy, from Benfleet, Essex, suffers with Ehlers-Danlos Syndrome, a connective tissue disorder, which can leave her feeling withdrawn, isolated and unhappy. Embargoed to 0001 Thursday January 19 Undated handout photo issued by the PDSA of assistance ...

Ivar The Boneless: Did A Disease Cripple The Infamous Viking?

The Inquisitr - Jan 12, 2017
Whereas Ehlers-Danlos syndrome affects connective tissues, Osteogenesis imperfecta is a genetic defect that weakens the bones themselves. Although Osteogenesis imperfecta can cause damage to the joints and muscles, the most common symptom is ...

Sports coach with rare condition tells how she was wrongly sectioned for eating disorder

Gazette Live - Jan 1, 2017
Now after finally being diagnosed with a genetic condition Ehlers Danlos Syndrome (EDS) the 26-year-old is hoping to raise awareness and help others from suffering as she did. Jennifer, of Coulby Newham, said: “Ehlers Danlos has taken away a lot of my ...

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Ehlers Danlos Syndrome books

Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome

by: Brad T Tinkle
As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: ".
>> More info on Amazon

A Guide to Living with Ehlers-Danlos Syndrome : Bending without Breaking

by: Isobel Knight

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists.
>> More info on Amazon

Zebras of Hope: A Guide to Living with Ehlers-Danlos Syndrome

by: Ellen C. Kelleher
This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life.
>> More info on Amazon

A Multidisciplinary Approach to Managing Ehlers-Danlos - Hypermobility Syndrome: Working with the Chronic Complex Patient

by: Isobel Knight

The complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patient's physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient.

This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia.
>> More info on Amazon

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Ehlers Danlos Syndrome videos

Ehlers-Danlos Syndrome - CRASH! Medical Review Series

Disclaimer: The medical information contained herein is intended for physician medical licensing exam review purposes only, and are not intended for diagnosis ...

Sarasota teen battles Ehlers Danlos Syndrome


EDS Primer -- Could you have Ehlers-Danlos syndrome?

Dr. Diana as Patient explains the various forms of Ehlers-Danlos Syndrome (EDS). This is often misdiagnosed as \

Ehlers-Danlos Syndrome

This documentary will take you through Lynn's life beginning at age 15 when she began to experience nagging pains in her hands during swim practice until she ...

Dr. Brad Tinkle presents “Introduction to Ehlers-Danlos Syndrome”

Brad T. Tinkle, M.D., Ph.D., is the Medical Director of Clinical Genetics at Advocate Children's Hospital in Chicagoland. Learn More at: ...