What's on the web on your pursuit, hobbies, interests and worries

EhlersDanlosSyndrome news

Patients with Ehlers-Danlos syndrome seek medical marijuana

WMUR Manchester - Mar 19, 2017
She suffers from Ehlers-Danlos syndrome, a connective tissue disorder that can cause excruciating pain. Pang and others with the condition are calling on lawmakers to pass Senate Bill 159, adding Ehlers-Danlos to the list of qualifying conditions in ...

GBMC to host Ehlers-Danlos Syndrome research

ABC2 News - Mar 16, 2017
The Great Baltimore Medical Center will now be the site of the Ehlers-Danlos Society Center for Research and Clinical Care. Ehlers-Danlos Syndrom affects 1 in 5,000 people in the U.S. each year. It's a rare syndrome that affects connective tissue ...

My Daughter Has a Genetic Disorder So Rare, Even Her Doctors Don't Understand It

Babble (blog) - Mar 18, 2017
It would take two more years before we found out the truth: She had Ehlers-Danlos Syndrome (EDS); a rare genetic disorder that can cause heart defects, organ rupture, digestive issues, severe joint dislocations, musculoskeletal deterioration ...

Ehlers Danlos Syndrome - premium items on eBay

Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better


USED (VG) Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Livin


Ehlers Danlos Syndrome Awareness Ribbon Vinyl Wall Decal or Car Sticker


>> Go to all great Ehlers Danlos Syndrome deals on eBay

Ehlers Danlos Syndrome books

Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome

by: Brad T Tinkle
As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: ".
>> More info on Amazon

Special Like Me...: Ehlers-Danlos Syndrome

by: Mrs. Janelle L. Shannon LCSW
Special Like Me… Ehlers-Danlos Syndrome is uniquely designed to assist parents, caregivers, and professionals facilitate conversations with children who have Ehlers-Danlos Syndrome (EDS). This book is about a little boy's journey from bumps and bruises to diagnosis and beyond. The goal is to show EDSers and other children they are beautiful and amazing people that they can manage anything they set their mind to.
>> More info on Amazon

A Guide to Living with Ehlers-Danlos Syndrome : Bending without Breaking

by: Isobel Knight

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists.
>> More info on Amazon

A Multidisciplinary Approach to Managing Ehlers-Danlos - Hypermobility Syndrome: Working with the Chronic Complex Patient

by: Isobel Knight

The complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patient's physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient.

This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia.
>> More info on Amazon

>> Go to all Ehlers Danlos Syndrome books

Ehlers Danlos Syndrome pictures on the web

>> Show

Ehlers Danlos Syndrome videos

Ehlers-Danlos Syndrome - CRASH! Medical Review Series

Disclaimer: The medical information contained herein is intended for physician medical licensing exam review purposes only, and are not intended for diagnosis ...

Pictures That Show What Ehlers Danlos Syndrome Really Looks Like

Read the full story here: https://themighty.com/2016/12/ehlers-danlos-syndrome-pictures/ TheMighty.com @TheMightySite Facebook.com/TheMightySite.

EDS Primer -- Could you have Ehlers-Danlos syndrome?

Dr. Diana as Patient explains the various forms of Ehlers-Danlos Syndrome (EDS). This is often misdiagnosed as \

Beighton score and hypermobility in Ehlers Danlos Syndrome

Please don't practice hyper mobility 'tricks' they can be damaging.

Sarasota teen battles Ehlers Danlos Syndrome